Monday, November 23, 2015

Your Rights, One Voice: Vaughn’s Story

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Vaughn Soto 1

Vaughn of Jacksonville, Florida, loves summer camp. Vaughn, who was diagnosed with type 1 diabetes in the fall of 2014, is like millions of other children who attend camp each year. They love camp because it’s fun, helps build great relationships and offers learning experiences that are not available most anywhere else.

So, in the spring of 2015, when Vaughn’ mother Kira got a message from camp saying he could not attend that summer, she was naturally upset. She was told, “I’m sorry for the bad news. We are not equipped to handle a camper with diabetes.”

Kira has been a paralegal for years and, with her legal background, believed that Vaughn had rights that made this situation unfair. Kira could not bring herself to tell Vaughn he couldn’t go to camp — especially that it was because of his diabetes. She knew Vaughn would not handle the news very well.

Instead, she contacted the American Diabetes Association for help.

She wrote, “My son has been begging to go to camp this summer. Telling him he can’t go would severely affect his self-esteem. I want him to have a normal camp experience like other kids. Thank you for any legal advice you can provide to help my son.”

Kira spoke with a Legal Advocate at the Association and learned that Vaughn did have legal rights.

She was told that, under federal law, Vaughn should be allowed to attend camp and provide accommodations for his diabetes care. The Legal Advocate also shared resources to help Kira discuss this with the camp organizers, such as a sample letter, tips on how to speak with administrators and hints for negotiating on behalf of her son.

Supplied with this information, Kira was able to achieve success.

The camp reversed its policy, made changes to care for Vaughn’s diabetes and allowed him to attend. Kira never even told Vaughn what had happened. He just went to camp and had a great time. Things went very well and he had no medical problems at all.

His diabetes should never have been an issue in the first place.

“I am so thankful for the American Diabetes Association. I have volunteered to get involved and help others who may not know where to turn when their child is being unjustly discriminated against.” – Kira


The American Diabetes Association leads the effort to prevent and eliminate discrimination against people with diabetes at school, at work and in other parts of daily life. If you need help, call 1-800-DIABETES or visit http://diabetes.org/gethelp.

Through our nationwide Safe at School program, the Association is dedicated to making sure that all children with diabetes are medically safe at school and have the same educational opportunities as their peers. Visit our Safe at School website for information and resources.

Give the gift of fairness — donate now to help people with diabetes facing discrimination, just like Vaughn. 

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From: American Diabetes Association http://diabetesstopshere.org/2015/11/23/your-rights-one-voice-vaughns-story/

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